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EVERYDAY LIFE, TOGETHER
Practical guidance. Experiences to share.
Living with Rett syndrome brings very practical questions. Explore useful resources, understand how they can help and prepare conversations with your care team.
At your own pace, focusing on what matters to you.
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Choose a situation to explore options, relevant contacts and questions worth preparing.
These guides come from the French corpus and are currently available in French.
Communiquer
Je voudrais mieux comprendre ce qu’elle veut.
Explore this situationConfort
J’aimerais mieux préparer mes observations.
Explore this situationÀ la maison
Notre maison complique certains gestes.
Explore this situationMobilité
Je cherche des possibilités pour les déplacements.
Explore this situationFamily experiences
Read published experiences or suggest your own. The stories remain in their original language.
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Your tools and contacts
Clear guidance, sources you can consult, and family contributions reviewed before publication.
Discover. Understand. Discuss.
Understand its use
See the context, relevant contacts and points to consider for each resource.
Prepare the exchange
Use the suggested questions to discuss a trial and the next steps.
There is no set pathway or mandatory equipment list. Every option should be adapted with the relevant professionals.