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⌂Portail RE2TEcosystem entry point♡Rett FamilyPortraits, daily life and projects◎Rett CommunityAssociations and initiatives↻RE2T Seconde VieDonate, sell and exchange equipment❞Communication RettWays to understand each other⌁Vivre avec le RettEquipment, support and daily landmarksYou are here⌕Recherche RettUnderstand and follow research✧Rett MemoriesMemories and tributesRL’association RE2TThe association connecting families and carrying projectsSRE2T StoreThe RE2T shop
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Living with Rett syndrome
SearchDailyMaterial & aidsFamily experiencesPrepare an exchangeMy resourcesContactsEmergenciesGuidance & guidesPrivacy
FrançaisEnglishDeutschItalianoEspañol
SearchDailyMaterial & aidsFamily experiencesPrepare an exchangeMy resourcesContactsEmergenciesGuidance & guidesPrivacy
Log inCreate an account

Daily life

Start from a real-life situation to explore avenues with the team.

France · content in French

About this content

Documentary guidance to check with the relevant professionals.

Family experiencesRead shared experiences or tell your own story→

Communiquer & faire des choix

Des supports papier aux outils commandés par le regard, explorez des moyens à essayer avec elle et avec l’équipe.

Report incorrect information — Communiquer & faire des choix · General information

Daily need: Communiquer & faire des choix · General information

Do not provide names, contact details, medical or personal data. Describe only the documentary information to be corrected. This form is neither an emergency service nor a request for medical advice.

Plain text only. Only your message and the documentary reference above are sent, without account or attachment. The text remains in this form in the event of an error, without saving or automatic sending.

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Inconfort & points de vigilance

Préparer un échange avec l’équipe sur les changements observés. Aucun moteur de diagnostic ni suivi de symptômes n’est inclus.

Report incorrect information — Inconfort & points de vigilance · General information

Daily need: Inconfort & points de vigilance · General information

Do not provide names, contact details, medical or personal data. Describe only the documentary information to be corrected. This form is neither an emergency service nor a request for medical advice.

Plain text only. Only your message and the documentary reference above are sent, without account or attachment. The text remains in this form in the event of an error, without saving or automatic sending.

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Adapter la maison

Partir des gestes du quotidien et de la circulation dans le logement, plutôt que de choisir d’abord des travaux.

Report incorrect information — Adapter la maison · General information

Daily need: Adapter la maison · General information

Do not provide names, contact details, medical or personal data. Describe only the documentary information to be corrected. This form is neither an emergency service nor a request for medical advice.

Plain text only. Only your message and the documentary reference above are sent, without account or attachment. The text remains in this form in the event of an error, without saving or automatic sending.

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Bouger & se déplacer

Explorer les aides à la marche, au déplacement et à l’activité, selon les capacités et les objectifs définis ensemble.

Report incorrect information — Bouger & se déplacer · General information

Daily need: Bouger & se déplacer · General information

Do not provide names, contact details, medical or personal data. Describe only the documentary information to be corrected. This form is neither an emergency service nor a request for medical advice.

Plain text only. Only your message and the documentary reference above are sent, without account or attachment. The text remains in this form in the event of an error, without saving or automatic sending.

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École, activités & loisirs

La participation est aussi un besoin : choisir une activité, jouer, écouter, sortir et retrouver les autres.

Report incorrect information — École, activités & loisirs · General information

Daily need: École, activités & loisirs · General information

Do not provide names, contact details, medical or personal data. Describe only the documentary information to be corrected. This form is neither an emergency service nor a request for medical advice.

Plain text only. Only your message and the documentary reference above are sent, without account or attachment. The text remains in this form in the event of an error, without saving or automatic sending.

Report incorrect information

Repas & hydratation

Repérer les sujets à aborder sur l’installation et l’alimentation. Les consignes de déglutition de l’équipe restent prioritaires.

Report incorrect information — Repas & hydratation · General information

Daily need: Repas & hydratation · General information

Do not provide names, contact details, medical or personal data. Describe only the documentary information to be corrected. This form is neither an emergency service nor a request for medical advice.

Plain text only. Only your message and the documentary reference above are sent, without account or attachment. The text remains in this form in the event of an error, without saving or automatic sending.

Report incorrect information

Sommeil & installation

Faire le point sur le couchage, le positionnement et les questions à poser, sans attribuer un trouble du sommeil au seul matériel.

Report incorrect information — Sommeil & installation · General information

Daily need: Sommeil & installation · General information

Do not provide names, contact details, medical or personal data. Describe only the documentary information to be corrected. This form is neither an emergency service nor a request for medical advice.

Plain text only. Only your message and the documentary reference above are sent, without account or attachment. The text remains in this form in the event of an error, without saving or automatic sending.

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Toilette & intimité

Explorer les aides pour la douche, les changes et l’accès aux toilettes, en préservant confort et intimité.

Report incorrect information — Toilette & intimité · General information

Daily need: Toilette & intimité · General information

Do not provide names, contact details, medical or personal data. Describe only the documentary information to be corrected. This form is neither an emergency service nor a request for medical advice.

Plain text only. Only your message and the documentary reference above are sent, without account or attachment. The text remains in this form in the event of an error, without saving or automatic sending.

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Alléger les transferts

Lit, fauteuil, douche : préparer une évaluation des transferts pour la personne accompagnée et pour ceux qui l’aident.

Report incorrect information — Alléger les transferts · General information

Daily need: Alléger les transferts · General information

Do not provide names, contact details, medical or personal data. Describe only the documentary information to be corrected. This form is neither an emergency service nor a request for medical advice.

Plain text only. Only your message and the documentary reference above are sent, without account or attachment. The text remains in this form in the event of an error, without saving or automatic sending.

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Véhicule adapté & sorties

Siège pivotant, rampe, plateforme ou véhicule adapté : comprendre les possibilités avant d’engager un achat.

Report incorrect information — Véhicule adapté & sorties · General information

Daily need: Véhicule adapté & sorties · General information

Do not provide names, contact details, medical or personal data. Describe only the documentary information to be corrected. This form is neither an emergency service nor a request for medical advice.

Plain text only. Only your message and the documentary reference above are sent, without account or attachment. The text remains in this form in the event of an error, without saving or automatic sending.

Report incorrect information

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